Request Access to Controlled Data
Controlled-access data is not available until you have submitted the required documents and are approved by the Data Access Committee (DAC).
Controlled-access data is limited to the following:
- All identifiable, individual-level human data.
- Examples include demographic descriptors, phenotypic measures, 3D images, and sequencing data.
Applying for Access to Controlled Data
In order to access this data, you must follow the process outlined below:
- Complete the FaceBase Data Use Certification Agreement.
- Complete the Data Access Request (DAR) document.
- Obtain an IRB approval from your institution. (If you have questions about IRBs, please consult the U.S. Department of Health & Human Services' site for the Office of Human Protections (OHRP).)
- Submit the Data Use Certification Agreement, DAR, and the IRB approval to the NIH Data Access Committee at nidcrfacebasedac AT mail.nih.gov.
You will receive an answer from the Data Access Committee within 4-6 weeks.
- Once your request is processed, you will be notified via email whether or not your user account is approved for human dataset downloads. Note that this permission to download human data expires a year after the date of approval.
- After the approval email is sent out, a member of the FaceBase Hub will contact you directly to provide the data securely (i.e., you will not download the data directly from the regular website.)
If you have any questions regarding this process or need help with downloads please contact the FaceBase Help Desk via email: help AT facebase.org.
Allow approximately 4-6 weeks for a response. If approved, you will have access to the human data for one year after the approval date.