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How to access FaceBase Data?
FaceBase Data fits into one of two broad categories: open and restricted access. Open-access data is available on the FaceBase website to any interested user and does not require any formal registration. Open-access data is limited to summary-level human data (ex: averaged facial measures), and all non-human data. In contrast, all individual-level human data (ex: demographic descriptors, phenotypic measures, 3D images) is restricted access data and requires the requestor to complete and submit the Data Access Request form found in the Official Documents.
How to contribute data to FaceBase?
The FaceBase Consortium’s goal is to develop a resource for the craniofacial research community, with a current focus on mid-face development and orofacial clefts. The highest priority is making data from FaceBase projects broadly available through the FaceBase website. We also welcome submissions of high-quality, well-documented datasets from non-FaceBase projects. Of particular interest are data from peer-reviewed publications that are relevant to FaceBase’s current focus on mid-face development and orofacial clefts. Unpublished data relevant to FaceBase’s current focus will also be considered, especially those that would otherwise be very difficult for the craniofacial research community to obtain (e.g., data from rare craniofacial conditions) or that are suitable for secondary or integrative analyses (e.g., RNA-seq, genotyping, or large-scale expression data). If you would like to know more about making data from your project available through FaceBase, please see the menu... more
How to request access to restricted human data?
- Complete the FaceBase Data Use Certification Agreement. https://www.facebase.org/odocs/data-use-certification
- Complete the Data Access Request (DAR) document, https://www.facebase.org/odocs/human-data-access-request and an IRB approval from your institution.
Submit the Data Use Certification Agreement, DAR, and the IRB approval to the NIH Data Access Committee at email@example.com
You shall receive an answer from the Data Access Committee within 4-6 weeks.
- Once your request is processed, you are notified via email that your user account is approved for human dataset downloads. Note that this permission to download human data expires 180 days after the date of approval.
If you have... more